How does EDS feel to me?

This is difficult for me to write.  I don't see myself regularly as a line-up of symptoms.  It's never as bad as the list might seem since I don't experience the whole list at once.  In general, I think I do pretty well.  Most of the time, I make it through my work day without any serious issue.  Some days, I get in a good workout.  Many of these things don't even bother me much because I don't remember life without this.




EDS is...


Reaching to grab something and my fingers bend backwards, refusing to hold it.


Suddenly dropping something that I thought I had a good hold on.  Note that many of my dishes are cracked.  -Just yesterday, I was washing out my pyrex dish at work and, in front of all of everyone in the break room, I dropped it (forcefully) and full of water.  Dirty water went everywhere!  Doing dishes is the worst!  That happens every time.


Neck pain that encompasses my entire head, jaw, eyes and shoulders.  I have no words to describe the pain that makes me throw up repeatedly for hours.  It's the worst thing I have ever experienced.


Muscle spasms that feel like rocks to the touch and twitch like a TENS unit.  I have a few that never release, no matter how much muscle relaxant I take.


Shoulders that dislocate several times a day.  It's always surprising when I sneeze and basically jerk them out of the socket while trying to cover my mouth.  As if a sneeze wasn't surprise enough.


Collar bones that snap into place first thing in the morning when I roll over to turn off my alarm.


Ankles that seem to separate when my feet leave the ground while I jog or run.  This sends a searing pain through them.  I still ponder running a marathon one day.  Maybe... Probably not :) that's crazy.


My low back and hips are so loose, I'm not even sure how to comment on them.  It's been an ongoing task to keep it at bey for the last 11 years, so I don't think I could do it justice in a few words.


Elbows that need to be yanked back into place when they get stuck in a bad position.


Dizziness.


Fatigue.


So, in case you didn't know much about EDS or how it affects me, this is some of what it is to me.